Adolescents and young people living with a disability or chronic condition – sharing research experiences

Date: Tuesday 27 June 2017
Time: 13:00 – 16:45
Venue: LG24, LSHTM, Keppel Street, London WC1E 7HT

This will be a workshop for sharing experiences; it will look at methodological approaches as well as thematic issues. Please let us know if you would be happy to offer a speed talk (5 mins) on this topic/related.


1:00 – 1.30          Lunch and networking

1.30 – 1.40          Introductions Maria Zuurmond

1.40 – 2.00          External speaker – Anna Spathis:  ‘Research with young people with cancer’

2:00 – 3.00          Speed talks: emphasis on sharing good practice & learning from our mistakes!

  • Shivani Mathur Gaiha – on mental health in India and engagement with young people
  • Mary Wickenden: Participatory research with disabled children working as peer researchers ! Lessons learnt
  • Jane Wilbur (Wateraid/LSHTM): Participatory research with adolescents and youth with disabilities in Nepal on menstrual hygiene.
  • MENISCUS-2:  Menstrual health interventions and school attendance among Ugandans” (Helen Weiss and team)

3:00 – 3.20          Coffee

3.20 – 4.00

  • Alicia Renedo: Reflections on the use of drawings and diaries when doing research with young people with chronic conditions

3.40 – 4.30

  • Cicely Marston: Ethical issues in research with young people with disabilities and chronic conditions
  • Violence against adolescents with disabilities (UNICEF team, TBC)
  • Maria Zuurmond: Research with young people with intellectual impairments- beyond tokenism

4.30 – 4.45 Plenary and next steps


This event is organised jointly with the International Centre for Evidence in Disability (ICED)  and the Centre for Maternal, Adolescent, Reproductive, and Child Health (MARCH),

Please let Maria Zuurmond know if you are interested in attending or speaking.


Free and open to all with no ticket required. Entry is on a first come, first served basis.


Maria Zuurmond: